New survey seeks to investigate and amplify marginalised voices in healthcare decision-making

Cysters and Endometriosis UK are working in partnership to ensure that all voices are heard in discussions about healthcare policy and initiatives, especially those from marginalised communities. Despite progress in healthcare data collection, there remains a gap in representing the experiences of marginalised groups, particularly for those impacted by conditions and diseases like endometriosis.

Here you can find  some more information about the project and why we are delivering it.

The survey seeks to gather insights into the experiences of marginalised communities, particularly concerning conditions and diseases like endometriosis. Participants are encouraged to share their experiences openly and honestly, knowing that their responses will contribute to shaping more inclusive healthcare policies.

Sarah Harris, a researcher at Cysters, said:

"We urge everyone to participate in this survey and share it far and wide. Together, we can ensure that all voices are considered in the conversation surrounding healthcare policy and resource allocation."

The survey is anonymous and takes approximately 15 minutes to complete. Participants are not required to provide any personal or contact details that could identify them.

To participate in the survey, please visit: Delayed Diagnosis of Endometriosis Among People of Colour in the UK Survey (surveymonkey.com).